36 hours post miracle surgery…UPDATE

Brian then showed me a verse that was on his daily verse app. And sure enough

….. it was Jer 29:11.

 I have to keep reminding myself of this truth and promise when I see her laying there seemingly helpless, still, hooked to so many machines, fighting to keep her heart and other organs strong. 

I miss my Cheesy, crazy Gia……

But, she now has a NEW hope and future. And God promises to take care of her and bring her home.

it will be a long road to recovery but she is a STRONG and brave girl with an even BIGGER GOD. And,  how wonderful knowing the Joy that is set before us and reflecting on the miracle that God did in that Operating Room just overwhelms me.

Especially knowing the incredible Prayer Army that He has raised up for our girl, it humbles us.

God has given her a new and miraculously improved heart. One that can last her her whole life.

 It’s just going to take some time for her heart and body to adapt to this new heart anatomy.

This is a marathon, not a race. EASY and steady…one day at a time.

We will get to that finish line called: HOME but we have a bumpy road to get there. 

Trusting God will carry us through.

I am so proud of my brave strong girl. I know she is fighting hard. She is my hero.

************

To give you a bigger picture,…..

Basically, Gianna has been given a new anatomy that uses a part of heart that she has never used before and this muscle is going to take some good time to strengthen and condition.

 Its in a bit of a shock now, and trying to adapt.

Right now her heart, lungs, liver, kidneys are all under a lot of stress due to being on Bypass for 4 hours. 

The plan is to keep her in paralytic/sleep state again today so her organs and body can rest for which I fully support. Sweet Gia’s body really needs this time to rest. She doesn’t need anymore stress than she already has.

She is going to be in ICU for quite some time and we are being prepared for a slow and steady race.

The current issues we are dealing with is her heart “pump and squeeze” is not where it should be and so they are hooking her up to a pace maker to see if her heart likes a little help to get into a good rhythm.

Her new ventricle is weak, tired and needs conditioning to be strong. This is the first time it has been asked to work and so the high levels that she is showing are all to be expected.

There is still a leaking mitra-valve that is back-flowing. We are praying for full healing of this valve and praying she will not need to undergo another surgery in this hospital before we leave, to replace her valve.

They are doing an echo on her to see how she is healing up and assess her heart’s function and recovery.

They are worried about her kidney and lung function and are doing an ultrasound to look deeper into these issues. Again, they are stressed from the surgery.

Basically, her precious body went through a LOT of stress just 36 hours ago, and we are dealing with all the aftermath now,

The doctor told us that all these complications that we are dealing with are expected. Gianna has a unique heart that underwent a HUGE surgery, which makes the recovery hard, especially with her heterotaxy syndrome.

I am so thankful for Children’s Hospital in Boston….they have been wonderful, and I know she is in good hands.

Brian will be leaving on Sunday, and I will be staying here with Gianna.

 Brian will bring the kiddies back the following weekend for a visit and I can’t wait to SQUEEZE my babies at home. I miss them SO VERY MUCH!

So proud of how they have sacrificially shown such love to their baby sister,….pray for them please, it is not easy to be separated.

I am so overwhelmingly grateful for caring grandparents who have filled in the gap for us.

This is not easy but SO WORTH it for the JOY and HOPE set before us,

Please keep praying for Gianna’s body and heart to be STRONG and heal!!!!!

We are so grateful for her prayer army!

Rejoicing in the day we are all back together again at home.