9 days post-miracle OP (big plans ahead)

Gianna is progressing beautifully for the most part.
So proud of her and praising GOD!

But, there are a couple issues right now that are muddying up the waters
First of all, her veins are all  blown and IV’s are failing. This is not the result of unskilled nurses (they are amazing here) its the result of many past surgeries and hospitalizations…girl’s had a tough road and her body shows the stress…
 Poor baby 🙁

They need another port to get meds in her effectively so they are going to do a main PICC line in her upper arm that goes to a vein and is bigger than an IV….but, has a greater chance of infection. However, it is the best option now.

BUT, that can’t be done today because we are battling high fevers and a strep lung infection and a UTI.

So, this also delays extubation. They would have done it today but want her extubated for the PICC placement.

GOOD NEWS:
no lung infection is keeping this strong girl down!! her chest xrays and looking good for the most part and she did fabulous on her sprint last night!
they are talking extubation possibly tomorrow (saturday) if she does good on her trial runs today and tomorrow morning!!
THAT MEANS daddy and kids will be here for this HUGE MILESTONE MIRACLE!!!
pray pray!

OTHER GOALS:
1) decreasing heart support meds
2) upping her rate of tummy feeds now that her tummy is waking up
3)decreasing sedation
4)changing to more powerful bursts of diuretics to off some of her fluid retention which will support lung work

PRAY this fever subsides so it doesn’t delay extubation….
PRAY for successful PICC line placement
PRAY her echo  they will be giving her today looks good and shows a HAPPY HEART!!

MY GIRL IS AMAZING!!

our GOD IS AMAZING!

now, I need to get real with a huge mama heart struggle. As she is waking (with all these tubes attached)….it is getting harder

Broke. My. Heart.

It was all I could do to not scoop her up. Gosh, its Killing me to not embrace her…i cant wait to get some of these tubes out of her so i can hold my child again…
….She then got a shot of pain meds, mama’s singing and touch and cuddles which helped to relax her again 

So hard to see her start to become aware….just want to take this yucky situation away. killing me.

Sigh….We’ll get through this sweet Gia!!! Stay strong. ..
On a PRAISE note: she’s still rocking the ventilator like no one’s business. ..she’s ready to kick it to the curb! !! Me too! 

PRAY FOR AN AMAZING WEEKEND OF MILESTONES!!!!!

Thank you, precious prayer army! So grateful!