The sun is finally out....and,.It's been confirmed,  we are being flown to Boston this afternoon.  PRAISE GOD.  Please pray for peace for Gianna,  I can tell she's anxious :(. She just keeps saying she wants to go HOME. :(. So,  I've been telling her that we have to go visit another doctor so they can... Continue Reading →

Love this pic from yesterday's sibling invasion 💜💜.  Gia had a hard night last night.  They had to up her already aggressive diuretics plan because she was starting to hold more fluid again.  She was woken up so many times to pee it off when all she wanted to do was sleep. Ugh. In my... Continue Reading →

The weather matched our moods today ...rainy and dark 🙁 (still no bed available in Boston CICU) but this awesome crew of siblings  brought some much needed sunshine🌞 to our room! Keep praying a bed opens up, it's very hard to wait in Limbo knowing the battle that's  ahead for our warrior. .praying tomorrow brings... Continue Reading →

CHOP has done an amazing job stabilizing Gianna and getting her stronger for transport and surgery in Boston  (thru, IV lasix, heart squeeze  meds and electrolytes ). Such an answer to prayer.   I just wish we could bring her home now 😢 But,  her heart is failing and needs open heart surgery.  Today, I go... Continue Reading →

I'm thankful my daughter is still alive, and fighting and  once again being given a new gift of HOPE thru an impending  surgery that we pray will heal her broken heart and restore her. She is a gift beyond compare that we did nothing to deserve, all God's grace.  I'm thankful for her siblings, my... Continue Reading →

Coloring is hard work for a princess......💗💗Sweet Gia is tuckered out most of the time while they are getting fluid off her body through iv lasix.  Though her face is still puffy, her body has lost a lot of the fluid, thank God.   She's currently on a "heart squeeze " medication and electrolytes.  Today pray... Continue Reading →

..Ok.....we are still processing everything.  so I'm gonna keep this short and share details later.  Gianna is in heart failure.  Cath showed that she needs heart surgery.  Doctors all feel Boston needs to do it.. they are all in agreement and confident in the plan forward.  Gianna and I will get flown to Boston from... Continue Reading →