Big. Big. News!!!!!Dr. Marx (we love him so much) came by to give us the amazing and miraculous news that her final heart echo looks wonderful!!!! I can't believe we finally get to hear those words!!! Gianna has a fully repaired heart (with the help of some extra parts) that is now fully efficient!! Thank... Continue Reading →
Changed forever
Can I just share my heart for a moment.I'm so overwhelmed. Amazed. In awe. Brought to literal sobs and tears tonight. The strength and bravery this precious warrior has displayed these past 6 weeks has blown me away. Sometimes the reality of it all hits me at once, like a ton of bricks. My heart... Continue Reading →
amazing weekend & our hopeful exit strategy!!!
I will let the pictures speak for themselves!Daddy and the girls came up for a long weekend visit  to surprise their baby sister! Gianna experienced so much more joy and determination with her family around!A cheerful heart really is good medicine!!!What made the Friday that they arrived all the more special, is that it was Tahlia's... Continue Reading →
Moving on up!!!!
Huge newsThe "plan" is to move to floor today! !! Woohoo!!! Hoping to post that good news update later! Pray!!!No vomit in past five hours...(she had suffered all day tuesday) ...please pray she's free of that misery Big morning!! We got Gia out of bed and let her put some weight on her legs with... Continue Reading →
ONE MONTH POST- 1st OP (praying us HOME)
Its beyond my comprehension how far we have come.I can barely process the fact  that tomorrow marks 4 weeks Post-OP (Her first surgery).Brian and I almost laugh at the realization that if we would have known, going into this, that our little girl would have had to endure THREE OPEN HEART surgeries in the time... Continue Reading →
PRAISE!
Gianna is out of surgery!!Yup, that (above) is just about how I am feeling right now.....after her third open heart surgery in 3 weeks,My hands are thrown up in the air in relief and praise!Thank you for praying for her so faithfully!!prayers were answered!It was successful! Her pacemaker has been inserted and it is working... Continue Reading →
3rd surgery tomorrow…
Please pray tomorrow around 1pm.We don't have an exact time, all I know is that Gianna is 2nd up in the ORShe will be getting her Pace maker which will assist her heart in keeping a healthy sinus rhythm.Thankfully, Gianna has a good escape rate (I call it her survival rhythm) since its basically what... Continue Reading →
scaling, wrestling….surrendering
I was just sitting down to write a blog update titled  simply "Scaling the wall"SCALING....to celebrate the HUGE victory of extubation yesterday!!!I was finally able to embrace my little girl and feel her "made new" heart beating against mine. Oh the peace to feel her weight against my chest again.I so missed that with every... Continue Reading →
BIG praises, big PLANS (Jesus, breath in her)
Gianna is looking great and everyone agrees she's doing wonderfully so the plan today is to wake her up more and wean her from her ventilator and possibly do sprinting (practice runs off vent) tomorrow with a plan for extubation at the end of the weekend if all goes well... I'm so excited...its been so... Continue Reading →
Gianna update (Friday 11/28)
So after two dark cloudy days, I am happy to report that the sun is shining again here in Gianna's room, and we love that!I love this gorgeous banner that Isabella surprised us with when they came to visit, so much love went into making it and it really brightens Gianna's room. I can't wait for... Continue Reading →