Gianna did 3 laps around the floor this early afternoon, she's a superstar carrying her transportable "heart ekg monitor bag" and bringing "Olaf" along (her IV pole). I was so encouraged by her desire and endurance to get up and moving!!! She was in great spirits too! Today her Dupont cardiologist stopped by ...he was... Continue Reading →
long term plan
Long term plan:They need to get her at a stable anticoagulation level with Heparin, while monitoring her closely neorologically, then new CT scan on Thursday and praying it will show healing ....please LORD! ( and MRI cannot be done because of her pacemaker evidently)...so, if all looks good then they will transfer her back on... Continue Reading →
Gianna update….
Brian and I are strategically tag-teaming. He is taking the weekend, and I am going to take over Sunday through the week since daddy's got to work. Its very hard to not be with my baby, but being at home to hug and comfort my other babies is very vital too. My heart is torn......She... Continue Reading →
Please pray. Urgent
,Gianna was rushed to ER last night, then admitted to ICU for seizures and bleeding on brain.They believe the blood thinner meds caused seizures...which is causing brain bleed. please pray for wisdom for her medical team!! Its very tricky formulating a plan to stop the brain bleed (thickening her blood) while keeping her heart valve... Continue Reading →
Christmas Miracle
"Gianna's heart looks beautiful, she's a survivor " (-Gia's cardiologist at her post-op this morning )***never have there been more amazing or truer words that we've been so thankful to hear***THANK YOU JESUS, THANK YOU PRAYER ARMY, tears of joy!!!!!!!MERRY CHRISTMAS! !!!!!
Much overdue update…..
this is overdueI have found it very hard to find a moment to sit down to write all my thoughts, praises, thanksgivings, updates, prayer requests, etc.....Part of the reason is that there is just no time.....we are trying to soak up the little bit of ADVENT that we were given.....almost 4 weeks was kinda just... Continue Reading →
How far she’s come!!!
This before and after shot takes my breath away and makes me cry....1)Gianna 4 weeks ago (the night I took her to the ER).... pre-miracle😢2)Gianna ** today**.....post miracle😍❤❤❤❤❤❤❤❤❤❤❤"YOU are the God who performs miracles; you display your power among the peoples. (Psalm 77:14) HE IS ABLE AND MIGHTY TO SAVE!Today was filled with lots of... Continue Reading →
He is able
Today's major PRAISE!!!! Just 4 weeks ago my daughter was in full heart failure. .....today her heart beats like a drum with a brand new mechanical valve. Gianna's post-op echo showed near perfect heart pressures and a strong heart squeeze. An answer to so many prayers....Thank you Prayer army....and here's the precious heart that you've... Continue Reading →
Answered prayers
(6 days post-op)answered prayers! !!!!! We made it (by the skin of our teeth) to the other side of what felt like an impassable mountain. ...we are so relieved to be out of cicu!!!!! .we are on floor!!!!! Praising God.....we see the light! !!!! Now we just have to get her INR levels stabilized and... Continue Reading →
Prayer requests
Poor Gia was not a fan of her sponge bath or nurse last night AT. ALL. ..... she's basically had the same pitiful sad expression all day.)...hard day for my warrior Praying joy returns soon. ..... (she's so darn cute though) We did manage a brief smile when she got to video-chat her fan-club at... Continue Reading →