Today has been soooo good for all of us. So therapeutic and just a chance to exhale and take a deep breath after two weeks of high level stress. Besides two echos (one she completely screamed thru, lol ) and a very traumatic bandage change of her PICC line (for which her dose of sedative... Continue Reading →
Surgical plans
Update: Just met w dr. Marx, Gianna's cardiologist. The preliminary plan Monday is to replace her failing mitral valve,. ....the prayer is to be able to fit a "mechanical" valve in there as opposed to the tissue kind, which is what she currently has. It seems Gianna's heart does not agree w a tissue valve. ... Continue Reading →
Our Angels
Feeling emotional. 😢😢 Here are the Amazing Angels God provided to finally get us to Boston Children's Hospital. We are currently in ER triage awaiting to get to her room...she's already being prepped for her surgery (thru labs and xrays) which is scheduled for Monday. I'm so so grateful for how they cared for Gianna... Continue Reading →
Angel flights to the Rescue
Prayer warriors, Huge huge praise!!!!! After many failed transport arrangement attempts this week from CHOP, we were so discouraged and ready to fly her there ourselves today. Well, After reading a message early this morning from our dear friend Meredith R Segal with the idea to contact Angel medic flights I started at 6 am... Continue Reading →
Off to Boston for her miracle
The sun is finally out....and,.It's been confirmed, we are being flown to Boston this afternoon. PRAISE GOD. Please pray for peace for Gianna, I can tell she's anxious :(. She just keeps saying she wants to go HOME. :(. So, I've been telling her that we have to go visit another doctor so they can... Continue Reading →
Pray hard
Love this pic from yesterday's sibling invasion 💜💜. Gia had a hard night last night. They had to up her already aggressive diuretics plan because she was starting to hold more fluid again. She was woken up so many times to pee it off when all she wanted to do was sleep. Ugh. In my... Continue Reading →
In limbo
The weather matched our moods today ...rainy and dark 🙁 (still no bed available in Boston CICU) but this awesome crew of siblings brought some much needed sunshine🌞 to our room! Keep praying a bed opens up, it's very hard to wait in Limbo knowing the battle that's ahead for our warrior. .praying tomorrow brings... Continue Reading →
Preparing
CHOP has done an amazing job stabilizing Gianna and getting her stronger for transport and surgery in Boston (thru, IV lasix, heart squeeze meds and electrolytes ). Such an answer to prayer. I just wish we could bring her home now 😢 But, her heart is failing and needs open heart surgery. Today, I go... Continue Reading →
Thankful
I'm thankful my daughter is still alive, and fighting and once again being given a new gift of HOPE thru an impending surgery that we pray will heal her broken heart and restore her. She is a gift beyond compare that we did nothing to deserve, all God's grace. I'm thankful for her siblings, my... Continue Reading →
Gianna update
Coloring is hard work for a princess......💗💗Sweet Gia is tuckered out most of the time while they are getting fluid off her body through iv lasix. Though her face is still puffy, her body has lost a lot of the fluid, thank God. She's currently on a "heart squeeze " medication and electrolytes. Today pray... Continue Reading →