"The desert will rejoice and bloom like a Wildflower"
Isaiah 35:1
Please pray tomorrow around 1pm.We don't have an exact time, all I know is that Gianna is 2nd up in the ORShe will be getting her Pace maker which will assist her heart in keeping a healthy sinus rhythm.Thankfully, Gianna has a good escape rate (I call it her survival rhythm) since its basically what... Continue Reading →
I was just sitting down to write a blog update titled  simply "Scaling the wall"SCALING....to celebrate the HUGE victory of extubation yesterday!!!I was finally able to embrace my little girl and feel her "made new" heart beating against mine. Oh the peace to feel her weight against my chest again.I so missed that with every... Continue Reading →
Gianna is looking great and everyone agrees she's doing wonderfully so the plan today is to wake her up more and wean her from her ventilator and possibly do sprinting (practice runs off vent) tomorrow with a plan for extubation at the end of the weekend if all goes well... I'm so excited...its been so... Continue Reading →
So after two dark cloudy days, I am happy to report that the sun is shining again here in Gianna's room, and we love that!I love this gorgeous banner that Isabella surprised us with when they came to visit, so much love went into making it and it really brightens Gianna's room. I can't wait for... Continue Reading →
Good morning. Happy thanksgiving Gianna had a good night. No big movement yet. The paralytic is taking its time to wear off. Cant wait to see her move.I think the plan is to slightly lift her sedation today. So i may see eyes open slightly! They may up her feeds because she's got good bowel sounds. ..so... Continue Reading →
This Thanksgiving, I reflect on all God has done.I am grateful for the miracles I get to witness as a mommy, as her mommy....I look at my warrior in front of me who lies so still while God is fighting mighty battles for her. I ponder the amazing act that He did.He made her  heart brand... Continue Reading →
The theme with little Gianna is "slowly but surely" They are moving slow in this unstable beginning stage with the hopes to see her progress gain momentum as she gets more stable. Her numbers are looking great. Lactate down. White blood cell count trending down. ..Strong ventricles . ...her left is now performing efficiently (for... Continue Reading →
I can not wait till the day I can share ice-cream with my baby girl again.... thank you for praying...She had a great night post-OP...holding steady.The first 24 hours are crucial and sensitive. They are again watching every number like a hawk!Please continue to pray that her heart agrees with all it's upgrades and pumps efficiently... Continue Reading →
See update below:
DEEEEEEP Breath....After hours of discussions, team meetings, extra imaging, and analysis of cultures....It has been decided that Gianna's heart should not wait longer for additional repair and they will be operating on her this afternoon around 3:00pm.This operation will be 4-5 hours long and she will be on Bypass machine for an hour or more.In... Continue Reading →
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