Coloring is hard work for a princess……💗💗
Sweet Gia is tuckered out most of the time while they are getting fluid off her body through iv lasix. Though her face is still puffy, her body has lost a lot of the fluid, thank God. She’s currently on a “heart squeeze ” medication and electrolytes. Today pray for a successful PICC line placement.
So, When Gia came in to the hospital she tested negative for any viruses or bacterial infections. Basically, every symptom that she was still exhibiting which looked like an infection was actually symptoms of her heart failure. Evidently the symptoms of viral and bacterial infections closely mirror heart failure symptoms. We are thankful that her tiny body started showing outward signs that her heart was in trouble and needed help….as the doctor confirmed it could have been fatal. Her catherization showed more signs of failure then we ever could see on her echoes.. she.has mitral valve narrowing and back flowing, (AV valve regurgitation) causing high pressures on both sides of heart and causing weakening of it valves, weakening of her heart squueze
Her lining between right and left ventricle has a big hole and two.smaller ones that was never discovered or are newly developed?
So, the heart is being severely compromised and failing because of deficient valves. (Think of a drain that is backed up. ..her blood is not flowing through her heart as it should for what her body needs )
This all explains her clinical decline over the past 4-5 months.
Thankfully she is stable now. We will probably get a whole complete new analysis once Boston sees her.
We have a “tentative plan forward ” and I’ve been told I will be given a 12 hour warning of departure to Boston Children’s.
We are told it could be as early as friday. I have no idea what will happen once we are there, which is hard for me….
**Prayer requests : that she is indeed operable once we get to Boston and that they can successfully repair her dysfunctional heart. We need a miracle of complete healing with ONE surgery. And a fast recovery with no complications. Also, pray for a supernatural peace to cover sweet Gianna as everything is very overwhelming to her. She’s so brave.
I can’t believe we will be back at Boston exactly one year from her 3 open heart surgery marathon. 😢. But, we are believing and hoping for miracles. We’ve seen God move these mountains before. I am so thankful and encouraged to see her so completely covered in prayers and love and support. We are so grateful and humbled . ❤
Daddy is coming up so I can go home overnight to fully pack and prepare for Boston. Please pray for peace for Gia in this transition
. ….deep breaths and much prayer. ….onward with HOPE.
