Here we are Together on Masaya Volcano, in Nicaragua. We were speechless, and in awe of the mighty visible hand of GOD that this scene held... There are no words for that first moment when you look down into the great abyss of fire, darkness and ash. It literally takes your breath away as you... Continue Reading →

Today is wear 💙🦋BLUE🦋💙 for #AMCawareness day...a day set aside to recognize all AMC warriors and bring awareness for more funding and research! ⁣⁣⁣⁣⁣⁣This is a rare disorder occurring in 1 out of every 3,000 live births. The incidence of true amyoplasia occurs in 1 out of every 10,000 live births.⁣⁣⁣⁣⁣⁣Arthrogryposis, also called arthrogryposis multiplex congenita (AMC), involves a... Continue Reading →

Here are 7 reasons why we are choosing thankfulness in a hard month as we remember a special Gianna -anniversary and as we grieve for our baby girl. As many of you may know, this month is the anniversary of traveling to China as a family and finally being able to embrace our GiaBia 6... Continue Reading →

To imagine your joy takes my breath away, especially in such contrast to my deep pain. ⁣⁣But, then there’s those moments when heaven will find a way to break through the grey earth. ⁣⁣Suddenly, Every sunrise is a peek into your sparkly smile. ⁣⁣Every rainbow is your echoed giggle sent from heaven. ⁣⁣Every seed I... Continue Reading →

Two years ago our skies fell, our sun fell, and we broke into a million pieces on a sacred ICU hospital room floor. ⁣We held and kissed our baby girl for the final time on earth and then we were made to leave her. ⁣They had to pry our arms and fingers off of her... Continue Reading →

We had been keeping a surprise from the kids! And there is an anointed story here that feels like a tangible hug from heaven in a hard season. This heart-shaped, black nose and red, curly fur and sweet puppy breath could not have bounced into our lives at a more significant time, and not something... Continue Reading →

With the whole country on lockdown to protect ourselves and others, it seems as though life just came to a screeching and sudden halt and we are all sort of standing around like a deer in headlights as our way of doing life just got turned completely upside down and inside out. It is hard... Continue Reading →

The first blooms of Spring have declared their coming glory in our Gianna’s winter garden. ⁣⁣New Life. ⁣⁣💜🌱 Glimpses of spring Miracles coming. ⁣⁣New life blooming from a broken garden.⁣⁣ To witness growth is a sacred honor. It’s Gods gift even in the trenches of grief. ⁣⁣To see love multiply beyond comprehension, despite loss, is... Continue Reading →

It's Friday night and this week closes with the weight of heavy sorrow on my heart for many I love who are feeling the immensity of deep loss. So much broken. You see, I know this deep groaning.... this midnight of the soul. This place of utter destruction. This holy space requires a special kind... Continue Reading →

After a month of serial castings and surgeries, pain and trauma and tears, and 4 years of playing on her back, watching the world run and walk on by her, and never being able to stand upright and play on her sweet ballerina feet..... We finally arrived at the glorious unveiling of Eviemira's miraculous new... Continue Reading →