Love this pic from yesterday’s sibling invasion 💜💜. Gia had a hard night last night. They had to up her already aggressive diuretics plan because she was starting to hold more fluid again. She was woken up so many times to pee it off when all she wanted to do was sleep. Ugh
. In my “CICU psychosis” I’ve actually asked (begged) her doctors if it was possible to just bring Gianna home, give her medications and let her enjoy the holidays and schedule surgery for the first of the year. After all, she looks so much better.
Of course, my doctor was quick to “pour cold water on my head” and inform me that this is all a false security. As soon as Gianna disconnects from her heart muscle IV meds and aggressive diuretics, she goes right back to the dangerous, deadly place she was in just 10 days ago when we abruptly arrived. 😢 Heres the deal: Gianna needs surgical intervention ro save her heart. What was thought (just months ago) that there was just one side, one ventricle weakening and back flowing that called for “monitoring” was actually discovered to be a biventricular “both sides” regurgitation……and failing, along with “never seen before” significant holes.
I hate the words “heart failure ” they make me mad. Those words denote such a hopeless feeling for her heart. But, her Boston surgeon (who miraculously built her 2 ventricular function) just one year ago is going to go back in and attempt to repair and bring her heart back to full function. We need a miracle. GOD CAN DO THIS. I’m trying to gear up for the battle ahead. But it’s Gia who will need to fight hard…I have no doubt she will. My warrior. We need to get her heart from “failure ” to perfect function. PLEASE PLEASE pray for God to move this mountain. My heart and mind are filled w anxiety and sadness yet HOPE …HOPE FOR GIANNA is where I try and pour my focus and prayers. She gets an opportunity for more HOPE. she’s been through so much, but look at that smile. A fighting tiger spirit….SHE IS SO LOVED. PRAY HARD VILLAGE. GOD IS ABLE
