Today is wear 💙🦋BLUE🦋💙 for #AMCawareness day…a day set aside to recognize all AMC warriors and bring awareness for more funding and research!
This is a rare disorder occurring in 1 out of every 3,000 live births. The incidence of true amyoplasia occurs in 1 out of every 10,000 live births.
Arthrogryposis, also called arthrogryposis multiplex congenita (AMC), involves a variety of non-progressive conditions that are characterized by multiple joint contractures (stiffness) and involves muscle weakness found throughout the body at birth.
Our Eviemira JunJun is a rare gem because she is made in the image of God and made special exactly how she was created to be. She is perfect just the way she is and it’s an honor to watch her bloom!
It’s ok to be different and it’s our uniqueness that makes the world a more wonderful and beautiful place. Can you imagine if every flower in a garden looked the same and acted the same and grew the same way? How boring! So, let’s keep teaching our children the wild beauty and wonder of differences.
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Our girl is a warrior and each day she fights hard to stand, take steps and walk. She is brave like her big sissy, Gia, who’s favorite color is blue, of course.
Eviemira does things her own way and that’s the most beautiful way for her to be….and we are daily amazed at how she adapts and finds new ways to do everyday tasks that we can all take for granted, like picking a flower, coloring a page, feeding herself with a spoon or drinking her milk, playing with toys.
Everyday is a miracle.
She is just incredible in all the ways and amazes us with her super-abilities!! So thankful God entrusted us with such a magical treasure!! She teaches us more about perseverance and determination than we could ever teach her. We are thankful to be hers and to get to watch her Miracles unfold. She is our blooming whimsical wildflower!
Fight on, sweet warrior…we are cheering you on every precious mountain -climbing step along the way!
Slide to see her amazing videos!
#eviemiracles #ballerinafeet #AMCwarrior #AMCSTRONG
